Jacksonville family launches a GoFundMe page as son battles a rare disease
Read full article: Jacksonville family launches a GoFundMe page as son battles a rare diseaseJACKSONVILLE, Fla. – Rare Disease Day is on Sunday to raise awareness about rare illnesses and the impact they have on millions of people around the world and in Florida. 4-year-old Elijah Williams lives in Jacksonville with Shwachman-Diamond Syndrome or SDS. You could offer him cake and we’re blessed if he eats it.”As Elijah gets older, Williams said there is a chance he could need a bone marrow transplant. “It’s possible through IVF to look for a bone marrow match within those fertilized eggs and say ‘okay, this is a match,” explained Williams. AdDue to SDS, Williams said Elijah gets a full panel of blood work done every two months and a bone marrow biopsy once a year.